NJRareDiseaseAlliance

About Us

The New Jersey Rare Disease Alliance is dedicated to improving the lives of the 800,000 rare disease patients in NJ. Our mission is to bring recognition to the issues rare disease patients face and to work together towards better treatment options and improved access to care. Patients, supporters, advocates, legislators, biopharmaceutical and life science industry executives, healthcare professionals, academia, and individuals committed to making a difference in patients’ lives are all invited to join us. Together we are stronger.


If you'd like to volunteer or receive notices about our future events and activities, please join our mailing list.