Would you like to receive notices about future NJ Rare Disease Alliance events and activities?
Follow us on Twitter!
Please use the Contact Us form to register for the event.
In keeping with this year’s global Rare Disease Day slogan “Join us in making the voices of rare diseases heard,” advocates in New Jersey will gather in Trenton for a training session on building relationships with legislators and other policymakers to educate and advocate on behalf of rare disease patients.
The training will take place at the New Jersey Business and Industry Association (NJBIA) at 10 West Lafayette Street from 10:00 a.m. – 11:30 a.m. on February 29. The training will be led by experts at BioNJ and HINJ.
Following the training session, patient advocates will walk to the State House to meet with legislators. The day’s events are being sponsored by BioNJ, HINJ, New Jersey Rare Disease Alliance and NORD.
NJ Rare Disease Alliance on Facebook!